Hellowa! Just a quick update because I don't really have very much to say (as hard as you may find that to believe!)
I had an appointment with my consultant on Monday and he showed me the letter from Professor Epstein in London and we talked about his recommendations to feed via NJ tube. Apparently I'll be in hospital about a week so that the necessary rate (60-90ml per hour) can be achieved then I'll be sent home with directions on how to feed at home. The aim is to get the rate high enough so that I only need to feed over a 12 hour period which shouldn't disrupt my life too much. I'm currently waiting for a bed in Gloucester Royal and the necessary tubing to be ordered so it could be anyday.
College this week has been pretty manic in order to reach the assignment deadline (which was yesterday) fortunately managed to get all my work in on time but as usual (being a work perfectionist) I still felt I could have done more but have learnt to know when to stop. I also had a tutorial yesterday with my personal tutor who said I should be aiming for a distinction in this subject - it makes me feel good to aim high. In the afternoon I presented my work to the tutors and class which was pretty nerve wracking - I always get anxious when speaking in class but managed to hide it pretty well. My tutors said that the images are rather 'flat' and I'm let down by my technical ability - I'm the first to hold my hands up and say "I don't know what the 'eck I'm doing" so this was a totally fair point and something I REALLY need to work on. I've been focusing greatly on the creative element rather than the technical so I need to shift focus a little. So, plan for this weekend - learn some technical blip blop and put it into practice!! I've got 3 days off now so need to use them productively!
My stomach is really not behaving itself at the moment - it really seems to hate me. I've absolutely HAD IT with liquid supplements so am surviving soley on biscuits and crisps which, if I only eat a little at a time, seems to go ok. The key seems to be to not allow myself to get too hungry so I eat more than a couple of bites because I know if I do, I'm in the danger zone and may as well wipe out the day.
Plenty of things to look forward to at the moment, going to see Dream tomorrow,Z is taking me to see Monty Roberts next Friday (coincides nicely with a day off college) and the following week is half term - highly likely I'll be spending it in hospital but I'd rather than than miss college (yes, really!) Feeling far more positive about the tube now and can't wait for my energy levels to improve - I tried to run yesterday as I was late for college and almost collapsed into the road. Safe to say I won't be trying that again! I'll leave you with the amusing image of little me, with an enormous bag of books trying to run - I wish I could have seen it myself!
Until next time, take care of yourselves my lovelies and feel free to message me anytime!
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